Emma has had a good couple of days! She has had her ups and downs, but more ups! She has been playing and eating so much better. Her counts are still low and her cbc (white blood cell count) has been zero! So much to be thankful for. She has been spiking fever after fever these past few days, but nothing has grown from the blood cultures. She was having some difficulty breathing this morning during her fever so they took a chest x-ray. We are still waiting for the results this afternoon. They don't expect to find anything it's just an extra precaution.
We were also in "contact precuation" the last couple of days. Emma had some bad diarrhea which sometimes mean an infection called Rodavirus. This is easily curable for Emma, but they are worried about other patients, and people outside of the hospital. Since Jonny and I usually don't leave the hospital, we didn't have to wear gowns, but everyone who came in and out had to put on a flattering yellow gown. The test came back negative, so now everyone can enter as usual.
Jonny and I went to the Arts Festival on tuesday afternoon for some lunch and time away. It was so wonderful to get out, but I was so sad and worried to leave her. As we were walking around I called my sister to see how she was doing. My sister said that the doctor was in and had some good news, but wanted to wait for us to come back. Jonny and I were so excited, and were thinking of all the good things she could say. We were really hoping that she would say that Emma is cured, we can go home immediately, and no more chemo!!! Well, we didn't get that news, but the genetics test came back in Emma's favor. She has a deletion of the MLL gene, which has a better prognosis than the rearrangement. That is exactly what we prayed for, and that is exactly how God answered!
Please pray that Emma has good days ahead! Pray that she continues to eat well, and that she starts to build good white blood cells. Pray that we get to go home sometime next week, Emma is so ready! And as always, pray for a complete healing!
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