Friday, May 8, 2009

What a long week!


Emma has been doing well the past couple of days. She has been smiling and playing almost like normal. We think she might be in a little bit of pain after her surgery, so we give her morphine as needed. We also think she is still teething which is adding to her pain. She has been sleeping better at night, but still gets up early ready to play. I am trying so hard to get her on some sort of schedule, but with all of the nurses and doctors checking on her all of the time it is hard to keep it. Her white blood cells have recovered and are at 780 as of today. This is a fabulous number so far and we pray that she continues to produce more and more. There is no sign of leukemia in those cells also. Her platelets are still low along with her red blood cells, so they will be doing transfusions to help raise those.

Jonny went to urologist on wednesday because he has been having some pain which they thought was an infection. They found 3 kidney stones, one in his bladder and one in each kidney. The one in the bladder was too big to pass so they decided to operate on thursday to remove it. I know they say that it is such a simple procedure, but he is my husband. I was so torn between going with him to the procedure or staying with Emma. I decided since Emma was feeling well, I would go with Jonny but would be ready to come back if anything happened. Jonny's grandparents were more than happy to help us out too. His grandma stayed with Emma along with my wonderful friend Callie, and his grandpa and I took Jonny to get the operation done. The operation went great, and they are sending the stone off to see what its composition is so we can prevent these in the future. The stress of the situation did not cause the stones, but it caused the movement of the stone. Jonny and I are trying to figure out a way to deal with a stress so it doesn't affect our health. Jonny is back to normal today and even got out to get a haircut and some lunch with his buddy Gerod.

Emma had a CT scan on tuesday because her stomach was puffy again and she was spiking fevers. They also wanted to make sure she didn't have a fungal infection instead of bacterial. They said that they found a little spot of pneumonia on her upper lobe and what they thought was inflammation of the appendix. They said that this was nothing we need to worry about now and that the antibiotics that she is on would take care of it. They have her on at least 4 antibiotics along with an anti-fungal medicine so they thought she should be covered.

On thursdays the oncologists have a big meeting with the surgeons, PA's, residents, and students to discuss the patients. They all reviewed the CT scan from tuesday, and thought that she may have an abscess above her bladder. The oncologists want to wait until monday to see if it is small enough for the antibiotics to take care of it. If it is still there monday then they will operate. They will go in and drain the abscess and check out all of her other organs to make sure they are okay. The surgeons have been in everyday to check her out so they are keeping a very close eye on her. If she is clear on monday they will think about sending us home for a couple of days before starting her next round of chemo.

This has been a very stressful and tiring week, but through it all God has given us the energy and strength to get through it. He has given such wonderful family and friends who have been there since day 1. We want to thank everyone who has loved and supported us throughout this journey so far. We appreciate the time and thoughtfulness you have put in to make our lives easier.

Today is a fabulous day! Emma is happy and Jonny is healthy again : ) Praise God!!!

Pray specifically for:

No surgery on monday. Pray that the abcsess is gone by monday.

Her counts continue to recover.

Minimal or no side effects from the medicine and chemo.

No infections.

Mine and Jonny's health.

1 comment:

  1. We will be praying that Emma doesnt have to have the surgery on Monday and that the abcess will either be much smaller or just gone altogether. We love you guys!! Just remember we are always here whenever you need us!

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