Monday, July 27, 2009

Feeling Great!

Emma just completed another round of chemo last week, and is doing great! She was a little out of sorts on thursday because she had a spinal, but by that evening she was normal happy Emma. She did receive a cathedar which fell out the first night and leaked the second night. So she had 3 cathedars put in in 3 days! She is sleeping in the hospital crib by herself now, so I actually get to sleep on the couch or chair.

She will admit again on Thursday for another round of the high does methotrexate and then the following week for cytoxin and mesna. That treatment will be for 5 days and we will be discharged on the 6th day. After that we will wait for her counts to recover and then she will start another round of chemo. This is a brand new chemo med that she hasn't had yet. It is called high dose aricie (sp?). She only gets 2 days of this, but they are going to keep her for 3 weeks in the hospital. About 20% of children get a blood infection from this chemo and they would like to keep a close eye on Emma because she is so young. After that, our in-patient visits will not be as often or as much.

Ugh! 3 weeks in the hospital!! Jonny and I can handle it just fine, but poor Emma. She gets so incredibly restless being in the hospital for just a few days, but 21 days just might push her over the edge! She has been such an amazing little girl through all of this. She is always so happy. She is very talkative right now and is able to wave bye bye. She will also dance if you ask her to (although she doesn't do it every time you ask). She isn't crawling yet, but can roll where she wants to go and is also very good at scooting sitting up and on her tummy. She is a mama's girl right now and cries everytime I leave the room. It is very sweet, but sometimes I find it hard to leave even when I'm just going to the bathroom : ) Maybe this stage will pass soon. She is sleeping in her crib about 2-3 hours and then cries until we put her in bed with us. As soon as she hits the pillow(she has her own pillow in our bed), she looks at Jonny and smiles and then looks at me and smiles. Then she closes her eyes and falls asleep. Boy does she know how to work us : ) Although Jonny and I don't sleep well with her in our bed because she takes up all the room, we enjoy those moments with her.

Please pray specifically for:

Next round of chemo

No side effects from chemo(short term or long term)

A restful stay at home

New chemo treatment(no blood infection or side effects)

Jonny and my health

No relapse

PRAISES!!

Emma feeling great

Our health

Emma's development

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