Another Week at Home!

Emma wasn't feeling well on the 4th of July, but we got to celebrate twice because they didn't do fireworks until the following friday. She was in such a great mood and feeling well so we kept her up to watch the fireworks. She seemed to enjoy them, but she was so tired that it wasn't the reaction I was expecting. She sure looked adorable in her outfit though : )

She has had a fabulous time at home with the majority of good days. We have taken her out because her counts have been great, but we have to stay indoors because of this horrible heat! Maybe we will get a break this weekend and we can do something outside. Emma isn't able to get her central line wet, but maybe we will just stick our feet in the p0ol!

She had a pre-admit appointment yesterday but her platelets were still too low to start another round of chemo. Her hemoglobin was also on the fall so she may have to have a transfusion tomorrow. She has been a little pale and sleeping more than ususal so a transfusion maybe a good thing. They scheduled her an appointment for tomorrow morning for a cbc to see if her platelets and hemoglobin will recover on their own. She will then go in for a pre-admit appointment on wednesday and a possible admission on thursday. Another reason for the week break is to clear up a bad diaper rash she has had. It has improved tremendously, but they would like for it to be completely gone before starting the methotrexate. This chemo is known for causing mucoucitis which can cause sores in her mouth all the way to her bottom : (

So, we are happy that we get another week at home with our little girl! She was able to go to daddy's softball game and take a picture with the team who has been playing for her. We have also been shopping a few times because she enjoys it so much! Oh no daddy, she may already have a shopping problem : ) I know I do when it comes to buying stuff for her. I keep telling everyone how she has too many clothes, but then I come home from the store with 3 new outfits! I think it is impossible for me to come out of store without buying something for Emma.

She is really trying to figure out how to crawl, but just gets so frustrated. Instead of saying "dada" and "mama" she is just clicking her tongue. She has also developed this laugh that sounds fake, but I think it is just her laugh now. It is precious! We are working on eating more solid foods too. She has a problem with the textures of foods rather than the taste (or atleast thats what I think it is). The nutritionist said to try at least 25 times before giving up on a food. Boy do we have our work cut out for us! My parents are in town this week so she is enjoying spending time with them, and I'm enjoying the extra sleep : ) Poor Jonny has to go to work and is getting no extra sleep. Plus he is having to work in this horrible heat!

We praise God everyday for Emma's health. She is still in remission with no signs of leukemia blasts! I guess I just thought that she would be so much more sick on chemotherapy, but he has protected her little body from that. I'm not saying that she doesn't feel bad, but even on those days I feel him swoop her up in his arms to get her through it. I still don't understand why she has to feel bad, but what parent understands that anyway. Never did I think that I would be able to handle my child being sick with a life-threatening disease, but God has given me a strength I never thought I could have.

Praises:

Emma's remission

Minimal side effects from last round of chemo

Protection of Emma's body from chemo

Prayer requests:

Continued protection of her mind and body from chemo

No side effects from next round of chemo

Her hemoglobin and platelets recover on their own(No transfusion and she can start next round of chemo)

A restful stay at home

Mine and Jonny's health so we don't get Emma sick

Healing of her diaper rash

Protection of Jonny from working in the heat