Today we finally have a plan! This morning Emma had an x-ray and an ultrasound which revealed she has some air/gas leakage in her intestine. The doctors are not %100 sure but they believe she has a infection which is causing her intestinal wall to leak air/gas into the blood stream. The leak is not alarming as of now, what is concerning is what is causing this to happen. The doctors have consulted and believe that a minimum of 7 days of antibiotics should resolve the problem. We are worried as any parent would be, but we are relieved that we have a plan now. Today she started her first day of antibiotics, so we have 6-14 more days here :(
Emma is now NPO which means that she can not have any food or liquid for a minimum is 7 days. This is sad because Emma has learned the sign language sign for "more" so every time she sees food or a cup she signs "more." It is really cute but sad at the same time because she is so hungry. Also anytime she sees pizza or french fries on T.V. she says "mmmmmm." Is it cruel to laugh when she does that?
Emma will be put on TPN for nutrition while she is NPO, I know I am using a lot of abbreviations but I don't know what the letters stand for. TPN is delivered to her through IV so nothing will be flowing through her stomach. The doctors call what we are doing "gut rest" we call it torture.
Please pray for:
The antibiotics to do their job and kick this infection to the curb
The antibiotics to take care of the VRE that Emma has on top of everything else
This infection to begin to heal fast so Emma does not require surgery.
Especially pray that Emma does not lose her interest in eating while she is NPO
Pray for Jessica and myself while we half to deny Emma food for 7 days.
That the TPN does not effect her liver negatively, which is a small possibility.
That we can find some rest here at the hospital
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I love you guys and wanted to let you know I continue to have you in my thoughts and prayers. I just know the antibotics, will give Emma's body the strength to fight this off and get well. You (we) are blessed to have Emma in our life, but she (we) are equally blessed to have the both of you, Emma's parents, in our life! Love you. Vicki
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