May 5th!

May 5th is the day that we expect Emma to be completely done with treatment!!! Hooray!!! Now, this date could change, but we are hoping it will be close to. The end is so near that we can taste it : ) We are really hoping that we will get to take her central line out soon after treatment. We will just have to go over our options with the doctors once her treatment is over.

Emma has been feeling pretty sick the past few weeks. She has had a lot of diarrhea and vomiting and has been so tired and out of sorts. We have been in close contact with the clinic the past few weeks trying to figure out what is going on. Jonny and I have been extremely worried about her because she hasn't been herself. Today, she had a spinal chemo treatment and we got to talk with the dr. in depth about what has been going on with her. Last night we found blood in her stool which could be a sign of something else going on. They are going to run several tests to try to figure out what is causing all of this, and to see if there is a solution.

On the upside, she has been turning into a toddler right before our very eyes. I don't like calling her a toddler because she is still my baby, but I can't stop it. She is now falling asleep on her own (well, most of the time). She is saying about 16 words and is communicating very well with us. She is learning how to color, and loves to put stickers on paper. She is rearranging everything in the kitchen and learned how to unroll the toilet paper : ) Her favorite dvd is Barney's Top 20 Countdown. She enjoys joining Barney in doing the actions to all of the songs. We even take Barney with us in the car so she will not fuss on the way to the clinic : ) If she wants to watch Barney at home, she will attempt to say his name and then bring us the remote control so we can change the channel. She has also tried to stick a dvd in the vhs player to try to get Barney to play.

Eating is still a challenge and her main source of nutrition is formula. She will eat amost anything chocolate and her new thing is doritos and french onion dip. This chemo sure has messed with her taste buds and gag reflex : ( We are hoping that we will find out what is going on in the next few days. We are ready for her to start running around the house again like crazy : )

Please Pray:

The doctors to figure out what is wrong with Emma so she can feel better

No side effects from the chemo (short term or long term)

Time to fly in the last several weeks of treatment : )

An increase in Emma's appetite and weight gain

For our family! It has been a rough year and we are ready for some sort of normalicy

The health of our new baby!