Emma was admitted today for her last in-patient treatment. Although we are very excited to get it over with, we are completely wiped out from the long day! We knew it would be a challenge to keep Emma occupied, but Jonny and I are exhausted. Since she is constantly walking around the room and the halls, it is our job to chase her around with the IV pole. And Emma doesn't give us any warning when she takes off, she just goes : ) We have decided to take shifts so we can each have a break. We would have more visitors, but because of the weather it makes it dangerous to travel. But her Nana and Gramps came up for about an hour today to visit. That was nice!
Emma has completed her first chemo for the day and will be on a rescue drug for 4 hours and then fluids all night. This will clear all of the chemo out of her system so it won't damage anything. Emma usually tolerates this chemo very well, except it will probably make her hair fall out again. I don't mind her little bald head, but I'm so ready to do her hair in pigtails : )
I think we are going to all turn in early tonight! Goodnight everyone!
Thursday, January 28, 2010
Tuesday, January 26, 2010
Walking Days!
Emma is officially a walker! And is very good at it. She just decided to take off one day and hasn't stopped going. We love it! She is also talking non-stop which is just so much fun to hear. She says a lot of words that we recognize, but sometimes she just babbles. She knows what she is talking about, but nobody else can understand. She has blossomed so much in the past month or so. She is doing something new every single day.
She made her first visit to incredible pizza and had a blast. It was very scary for mommy though because of all the germs, and I literally followed her around with hand sanitizer : ) I know she was getting annoyed, but she would stop playing and let me sanitize. I don't think we will be going back there until she is done with treatment because it was too stressful on me : )
She was going to admit into the hospital today for her last visit, but she didn't make counts so we will try again thursday. We are so ready for this chemo to be over and do not want anymore delays. But she does get 4 days of rest from chemo, which is a praise. She is still having a hard time eating most solids, but has some favorites. She loves cheese, popcorn (the white cheddar flavor), captain crunch with berries, apples and peanut butter (she loves to dip dip dip). And when she dips, she has to say "dip, dip, dip." So precious!
After this 5 day stay, she will have chemo through mid-april at home and at the clinic. And then we are finished!! She will still have frequent clinic visits for blood counts, and she will have to leave her central line in for several months after, but no chemo! The doctor told us that the first year is the most risky year for relapse. I was not prepared to hear that, but I have complete faith in God that he has healed Emma and she will NOT relapse.
Please pray:
Emma have a restful and relaxing break from chemo
She will make counts on thursday so she can admit on friday for her last in-patient chemo
No side effects from chemo (short-term or long-term)
Strength for our family to finish this treatment out
Pray for our new baby(for their health and development) Due date is August 21
She made her first visit to incredible pizza and had a blast. It was very scary for mommy though because of all the germs, and I literally followed her around with hand sanitizer : ) I know she was getting annoyed, but she would stop playing and let me sanitize. I don't think we will be going back there until she is done with treatment because it was too stressful on me : )
She was going to admit into the hospital today for her last visit, but she didn't make counts so we will try again thursday. We are so ready for this chemo to be over and do not want anymore delays. But she does get 4 days of rest from chemo, which is a praise. She is still having a hard time eating most solids, but has some favorites. She loves cheese, popcorn (the white cheddar flavor), captain crunch with berries, apples and peanut butter (she loves to dip dip dip). And when she dips, she has to say "dip, dip, dip." So precious!
After this 5 day stay, she will have chemo through mid-april at home and at the clinic. And then we are finished!! She will still have frequent clinic visits for blood counts, and she will have to leave her central line in for several months after, but no chemo! The doctor told us that the first year is the most risky year for relapse. I was not prepared to hear that, but I have complete faith in God that he has healed Emma and she will NOT relapse.
Please pray:
Emma have a restful and relaxing break from chemo
She will make counts on thursday so she can admit on friday for her last in-patient chemo
No side effects from chemo (short-term or long-term)
Strength for our family to finish this treatment out
Pray for our new baby(for their health and development) Due date is August 21
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